Monday, December 15, 2008
If you would like to join our team and walk with us (which we would LOVE for you to do!!) you can click on the badge in the upper right side of our blog here, and sign up!! Also in a little incentive to sign up early, Farmers is donating $25 to the March of Dimes for every walker who signs up before December 31st!! If you would like to walk, but aren't in our area, you can go to www.marchforbabies.org to find your local Walk!!
Thanks again to everyone who continues to support us and the March of Dimes!!
Sunday, December 14, 2008
Sunday, December 7, 2008
Alright!! So fun!! Well this is Zach (obviously) and this is from the first time we put him in his Exersaucer. Surprisingly he liked it a lot, although since he had such short little legs, even with it on the lowest possible setting his feet were still a good 3 inches from the bottom, so we had to fold up a couple of blankets and put them under his feet, so that they touched something! :) He was 7 months old at the time (3 mo adjusted) He was really happy in that thing, it became one of his favorite places over the next year!! We definately got our moneys worth out of it! (Well Grandma's money's worth since it was a gift form her :)
Alright, so I tag Bobbie, Autumn, Melissa, and Jan :)
Saturday, December 6, 2008
After the debacle at the shoe store we decided to check out the Disney Store, and he picked out the CUTEST little Wall-E.... he passed up a Lightning McQueen for it, which if you know him is HUGE! He spent the rest of the night saying Wall-E and holding it with a death grip, lol :)
Tuesday, December 2, 2008
Zach putting on the first ornament!!
Zach noticed that some of the presents have Cars wrapping paper on them, and was SO excited he brought it over just to show me, lol
mine & joe's houses :)
on another exciting note, this trip up we were finally able to get Grandpa to play Guitar Hero! And he LOVED it!! yea!!
Tuesday, November 25, 2008
Sunday, November 23, 2008
Well, this morning he woke up dry again, so I thought, ok lets try this again, just to see. So I put him in his underwear and he did SOOO much better!! I couldn't believe it. He only had 4 accidents today, 1 of which was at grandma and grandpa's house, but I think that was just from standing in front of a cold window, lol. So all in all it was a much better day, so we are going to keep trying this week. He is SO proud of himself when he goes in the potty, and loves to flush the toilet after we dump it into the toilet!!
Friday, November 21, 2008
Thursday, November 20, 2008
So we go in, go over the normal why we're there, what procedures.surgeries he has had in the past, all kinds of things. Then we got Zach to talk for him a little bit so he could hear how raspy/grunty he is when he talks. And then the Dr. put in a camera through Zach's nose down to see how his good vocal chord moves, and see if it looks like anything was caught up in there. So he looks around for a while looks at a couple different things and then pulls it out and says "Well neither of his vocal chords are paralyzed anymore, that happens sometimes." And my whole brain just went "duh... what?!?!?"lol. I had no idea what to say, i was totally NOT expecting to hear that, so all of the questions i had before we got there no longer applied and i couldn't think of a single thing to ask him! He probably thought i was quite slow, lol. SO basically he said he does have some scarring on his vocal chords probably as a result from being on the ventilator for so long, which is why, even though they both work now, he still has a soft cry. He said as he gets bigger, hopefully that raspyness will wear off and he should someday talk completely normal like anyone else! Also he said that the grunting he uses when he talks is just a way his body has come up with putting that extra emphasis behind what he is saying (since he cant yell or get to that high pitch most people can) and he should grow out of that too!!
So all in all it was an amazing day.. not the day I was expecting to have at all though!! It just amazes me how still (2 years later) we are still seeing these little miracles touch his life. He is such a blessing and seeing everything he has gone through and overcome has been the biggest testimony building experience I have ever been through in my life. We are so lucky to have been entrusted with this little guy and I cant wait to see what other hings he has in store with his life!!
Wednesday, November 19, 2008
Monday, November 17, 2008
However because of that (and because of my amazing husband who always is so laid back with this, it has helped me to ease off of it as well) i have learned to just go with it, if he hasn't hit his milestone by his adjusted birthday then oh well.. as long as he is making progress :) And that has helped a lot over the last year. And now, i am happy to report he is caught up to where he should be for his adjusted age!! Its such an exciting thing, and it has been such an amazement to watch over the last 2 years where he started off so far behind, and to see him catching up to other kids his age, it really just touches my heart.
In other exciting news Zach has a busy week this week. He has his physical therapy re-evaluation Wed afternoon, so we will know better after that where he is falling in with his development. Then Thursday he has an appt with a Vocal Chord Specialist. Basically just to follow up on his paralyzed vocal chord, and make sure it isn't hindering any sort of oral development. Also they want to make sure food isn't getting caught up on top of it, since it doesn't move at all. Then on Friday Zach is (finally!) getting his Brain MRI done. His Pediatrician and his Neurologist have been wanting to do this for a long time, but he was on oxygen and then they decided to wait until he was 2 to do it. For that basically they are looking to follow-up on his brain bleeds he had when he was born (Level 2 IVH), and also to check and see if there are any remnants of the "possible" stroke he had when he was so very sick in the NICU. Basically its just a looksie, see whats going on in there and see if anything looks worrisome. When Zach say his Neurologist last Friday she didn't seem too worried that they would find anything bad because he isn't showing any signs at all of having problems resulting from the brain bleeds. Now there are certain things that wont show up until he is in school, such as learning disabilities, ADD, ADHD and all sorts of other things, that could be as a result from it. SO basically like everything else related to Zach's health, we'll have to wait it out and see :)
On another exciting note, we are going to attempt full-blown potty-training this weekend. All weekend long this past weekend Zach would follow me into the bathroom every time i went and go over to his potty and sit on it. And he went pee-pee this weekend in his potty after his nap! And he has started again to wake up from his naps and nighttime dry. SO we figure what the heck lets go for it. Whats the worst that can happen: it doesn't work... oh well! we'll try again later then!! SO wish us good luck with it!! it would be SO fun to have him potty trained!!
Saturday, November 15, 2008
Friday, November 14, 2008
She also gave us a referral to get the MRI done that they have been wanting to do on Zach for a while, and now that he is off of oxygen and is 2 it is the perfect time to do so. They want to get a look to see if his brain is showing any signs of the possible stroke he had when he was in septic shock (in the NICU when his intestine perforated). Also they want to check to see what the remnants are of his brain bleeds he had when he was first born. He doesn't seem to show any signs of having brain problems, but (as is the story of our life) its better to check it out just in case :)
Tuesday, November 11, 2008
Friday, November 7, 2008
Tuesday, November 4, 2008
Afterwards, we met up with Grandma and went to lunch at Fudruckers :) Zach had a blast "playing" with the video games and stuff while we waited :) He's getting to be such a big boy!!