
Tuesday, December 2, 2008
Our little vacuumer!!
So we had the carpet cleaner in the kitchen a week ago, and Zach decided he needed to vacuum up the floor :) he was so proud of himself he clapped when he was done "cleaning"

on another exciting note, this trip up we were finally able to get Grandpa to play Guitar Hero! And he LOVED it!! yea!!

Tuesday, November 25, 2008
Happy Birthday Joe!!
Happy Birthday to the best Husband in the whole world!! I hope you had a wonderful day!! :) Love you!!


Sunday, November 23, 2008
Weekend of Potty Training!!
So this weekend we started potty training! Yesterday was a bit rough. He had easily over 12 accidents. Most of them were after he had gotten up from the potty and hadn't gone.. then as soon as he got out to the living room, BAM, he peed all over the floor. SO by about 5pm I'll admit I was a bit frustrated, and (not wanted to get frustrated at Zach or let him sense that i was frustrated) I said forget it! We'll try again in a couple weeks, and put a diaper back on him.
Well, this morning he woke up dry again, so I thought, ok lets try this again, just to see. So I put him in his underwear and he did SOOO much better!! I couldn't believe it. He only had 4 accidents today, 1 of which was at grandma and grandpa's house, but I think that was just from standing in front of a cold window, lol. So all in all it was a much better day, so we are going to keep trying this week. He is SO proud of himself when he goes in the potty, and loves to flush the toilet after we dump it into the toilet!! 
Well, this morning he woke up dry again, so I thought, ok lets try this again, just to see. So I put him in his underwear and he did SOOO much better!! I couldn't believe it. He only had 4 accidents today, 1 of which was at grandma and grandpa's house, but I think that was just from standing in front of a cold window, lol. So all in all it was a much better day, so we are going to keep trying this week. He is SO proud of himself when he goes in the potty, and loves to flush the toilet after we dump it into the toilet!!
Friday, November 21, 2008
Zach's MRI
Zach had his MRI this morning, and all in all it went really well. He was pretty apprehensive (as he always is in any sort of hospital setting) when we first go there, and was REALLY upset once they started the IV to give him his medication to sedate him. Luckily the nurse we had was an AWESOME IV started who works in the ER up at primary, and he was able to get Zach's IV in on this 1st try (which is unheard of for Zach!!). It took a long time and a LOT of extra medicine to finally knock him out... he was "not a cheap date" according to the nurses, lol (the male nurse who was about Joe's size said Zach had enough meds in him to knock out a grown man). Once they finally got him down, the actual MRI only took about half an hour to 40 min. Then waking him up was really hard to do... the nurse was about to break out the cold wet washcloths when Zach finally opened his eyes. After he drank a couple ounces of juice and kept it down he was good to go. We should hopefully hear the results back early next week. Now he is all snuggly, and sleepy, so its going to be a snuggle filled day here in the Magleby house!

Thursday, November 20, 2008
One Miracle after Another!!
So today Zach had his ENT appt with the vocal chord specialist up at Primary. We went in basically because in Jan of 07 Zach was diagnosed with a paralyzed right vocal chord, and his pulm just wanted us to follow up on it to make sure nothing (food/drink) was getting caught up on top of the paralyzed one.
So we go in, go over the normal why we're there, what procedures.surgeries he has had in the past, all kinds of things. Then we got Zach to talk for him a little bit so he could hear how raspy/grunty he is when he talks. And then the Dr. put in a camera through Zach's nose down to see how his good vocal chord moves, and see if it looks like anything was caught up in there. So he looks around for a while looks at a couple different things and then pulls it out and says "Well neither of his vocal chords are paralyzed anymore, that happens sometimes." And my whole brain just went "duh... what?!?!?"lol. I had no idea what to say, i was totally NOT expecting to hear that, so all of the questions i had before we got there no longer applied and i couldn't think of a single thing to ask him! He probably thought i was quite slow, lol. SO basically he said he does have some scarring on his vocal chords probably as a result from being on the ventilator for so long, which is why, even though they both work now, he still has a soft cry. He said as he gets bigger, hopefully that raspyness will wear off and he should someday talk completely normal like anyone else! Also he said that the grunting he uses when he talks is just a way his body has come up with putting that extra emphasis behind what he is saying (since he cant yell or get to that high pitch most people can) and he should grow out of that too!!
So all in all it was an amazing day.. not the day I was expecting to have at all though!! It just amazes me how still (2 years later) we are still seeing these little miracles touch his life. He is such a blessing and seeing everything he has gone through and overcome has been the biggest testimony building experience I have ever been through in my life. We are so lucky to have been entrusted with this little guy and I cant wait to see what other hings he has in store with his life!!
So we go in, go over the normal why we're there, what procedures.surgeries he has had in the past, all kinds of things. Then we got Zach to talk for him a little bit so he could hear how raspy/grunty he is when he talks. And then the Dr. put in a camera through Zach's nose down to see how his good vocal chord moves, and see if it looks like anything was caught up in there. So he looks around for a while looks at a couple different things and then pulls it out and says "Well neither of his vocal chords are paralyzed anymore, that happens sometimes." And my whole brain just went "duh... what?!?!?"lol. I had no idea what to say, i was totally NOT expecting to hear that, so all of the questions i had before we got there no longer applied and i couldn't think of a single thing to ask him! He probably thought i was quite slow, lol. SO basically he said he does have some scarring on his vocal chords probably as a result from being on the ventilator for so long, which is why, even though they both work now, he still has a soft cry. He said as he gets bigger, hopefully that raspyness will wear off and he should someday talk completely normal like anyone else! Also he said that the grunting he uses when he talks is just a way his body has come up with putting that extra emphasis behind what he is saying (since he cant yell or get to that high pitch most people can) and he should grow out of that too!!
So all in all it was an amazing day.. not the day I was expecting to have at all though!! It just amazes me how still (2 years later) we are still seeing these little miracles touch his life. He is such a blessing and seeing everything he has gone through and overcome has been the biggest testimony building experience I have ever been through in my life. We are so lucky to have been entrusted with this little guy and I cant wait to see what other hings he has in store with his life!!
Wednesday, November 19, 2008
Dot Art fun!!
So, yesterday we made these super cute caterpillar's so naturally.. (since caterpillars turn into butterflies) we made butterflies today! :) We used these super cute dot art things I got a little while ago. Zach had a blast!! he does have this problem with needing to kiss it, lol... SO he had some cute blue lips for a little while, but luckily it washed off by lunch :) 


Monday, November 17, 2008
2 Years Adjusted!!!
So today is Zach's 2 year Adjusted birthday! Basically meaning that 2 yrs ago today was his due date. And i must say that this day this year is a much happier day than it was last year! Last year i was still so wrapped up in him making his developmental goals... I thought for sure he would be starting to catch up by his 1 yr adj bday, and when that day came and he was still so far behind, it was a really hard thing for me to cope with.
However because of that (and because of my amazing husband who always is so laid back with this, it has helped me to ease off of it as well) i have learned to just go with it, if he hasn't hit his milestone by his adjusted birthday then oh well.. as long as he is making progress :) And that has helped a lot over the last year. And now, i am happy to report he is caught up to where he should be for his adjusted age!! Its such an exciting thing, and it has been such an amazement to watch over the last 2 years where he started off so far behind, and to see him catching up to other kids his age, it really just touches my heart.
In other exciting news Zach has a busy week this week. He has his physical therapy re-evaluation Wed afternoon, so we will know better after that where he is falling in with his development. Then Thursday he has an appt with a Vocal Chord Specialist. Basically just to follow up on his paralyzed vocal chord, and make sure it isn't hindering any sort of oral development. Also they want to make sure food isn't getting caught up on top of it, since it doesn't move at all. Then on Friday Zach is (finally!) getting his Brain MRI done. His Pediatrician and his Neurologist have been wanting to do this for a long time, but he was on oxygen and then they decided to wait until he was 2 to do it. For that basically they are looking to follow-up on his brain bleeds he had when he was born (Level 2 IVH), and also to check and see if there are any remnants of the "possible" stroke he had when he was so very sick in the NICU. Basically its just a looksie, see whats going on in there and see if anything looks worrisome. When Zach say his Neurologist last Friday she didn't seem too worried that they would find anything bad because he isn't showing any signs at all of having problems resulting from the brain bleeds. Now there are certain things that wont show up until he is in school, such as learning disabilities, ADD, ADHD and all sorts of other things, that could be as a result from it. SO basically like everything else related to Zach's health, we'll have to wait it out and see :)
On another exciting note, we are going to attempt full-blown potty-training this weekend. All weekend long this past weekend Zach would follow me into the bathroom every time i went and go over to his potty and sit on it. And he went pee-pee this weekend in his potty after his nap! And he has started again to wake up from his naps and nighttime dry. SO we figure what the heck lets go for it. Whats the worst that can happen: it doesn't work... oh well! we'll try again later then!! SO wish us good luck with it!! it would be SO fun to have him potty trained!!
However because of that (and because of my amazing husband who always is so laid back with this, it has helped me to ease off of it as well) i have learned to just go with it, if he hasn't hit his milestone by his adjusted birthday then oh well.. as long as he is making progress :) And that has helped a lot over the last year. And now, i am happy to report he is caught up to where he should be for his adjusted age!! Its such an exciting thing, and it has been such an amazement to watch over the last 2 years where he started off so far behind, and to see him catching up to other kids his age, it really just touches my heart.
In other exciting news Zach has a busy week this week. He has his physical therapy re-evaluation Wed afternoon, so we will know better after that where he is falling in with his development. Then Thursday he has an appt with a Vocal Chord Specialist. Basically just to follow up on his paralyzed vocal chord, and make sure it isn't hindering any sort of oral development. Also they want to make sure food isn't getting caught up on top of it, since it doesn't move at all. Then on Friday Zach is (finally!) getting his Brain MRI done. His Pediatrician and his Neurologist have been wanting to do this for a long time, but he was on oxygen and then they decided to wait until he was 2 to do it. For that basically they are looking to follow-up on his brain bleeds he had when he was born (Level 2 IVH), and also to check and see if there are any remnants of the "possible" stroke he had when he was so very sick in the NICU. Basically its just a looksie, see whats going on in there and see if anything looks worrisome. When Zach say his Neurologist last Friday she didn't seem too worried that they would find anything bad because he isn't showing any signs at all of having problems resulting from the brain bleeds. Now there are certain things that wont show up until he is in school, such as learning disabilities, ADD, ADHD and all sorts of other things, that could be as a result from it. SO basically like everything else related to Zach's health, we'll have to wait it out and see :)
On another exciting note, we are going to attempt full-blown potty-training this weekend. All weekend long this past weekend Zach would follow me into the bathroom every time i went and go over to his potty and sit on it. And he went pee-pee this weekend in his potty after his nap! And he has started again to wake up from his naps and nighttime dry. SO we figure what the heck lets go for it. Whats the worst that can happen: it doesn't work... oh well! we'll try again later then!! SO wish us good luck with it!! it would be SO fun to have him potty trained!!
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